is it incurable
or under-researched?

We are not waiting for answers.

The medical system is lightning-fast to label something “incurable” when it primarily affects women. If lipedema impacted the penis, we’d have entire institutes dedicated to it, billions in funding, and a Nobel Prize–winning treatment by now. But it’s us. So we’re handed compression garments, gaslighted, and dismissed. Which means we can’t wait around for the establishment to give us answers. We have to take matters into our own hands: we become our own researchers, our own advocates, our own proof.

The research

My lipedema work is rooted in the concepts of evolutionary mismatch and circadian biology. Evolutionary mismatch is the idea that the human body evolved for one kind of world (sunlight, movement, seasonal food, real rest, and time outside) —and now we’re living in a very different one. We’re indoors. We’re sedentary. We’re eating food with very little nutritional value. We don’t get true rest because we’re carrying screens everywhere, so our nervous systems are being pinged all day. Circadian biology is the study of the body’s internal clock. How light and daily rhythms set the timing for repair, inflammation, fluid balance, hormones, appetite, and energy. In the context of lipedema, both evolutionary mismatch and circadian biology are essential, and I’m honestly shocked there isn’t more emphasis on them in the research world. But when I look closer, I can’t ignore the obvious: there’s no product to sell here. No pill. No device. No shiny solution, because so much of what supports healing in this framework exists within your own biology and within nature.

Last year, I ran a small but meaningful pilot study designed to help clarify where my lipedema research needed to go next. It did exactly that. As I prepare for my next independent research project in 2026, I’ll continue to share updates here as the work takes shape. And if you’ve landed on this page because you’re navigating lipedema yourself, I want you to know this: I understand that experience personally. While I can’t offer medical advice or present “solutions” based on incomplete research or emerging hypotheses, I can listen. Sometimes having someone truly hear your experience of your body — without fixing, minimizing, or dismissing it — matters more than anything. You’re always welcome to reach out.